Information for people with Cushing’s syndrome

Taking back control

Cushing’s syndrome may sometimes make you feel that your life is out of your control. But there are things you can do that may help you take back control.

Good to know:
Doctors who most often treat Cushing’s syndrome are hormone specialists called endocrinologists.

Move forward with treatment recommended by your doctor
Once the cause of your Cushing’s syndrome is found, your doctor will recommend an appropriate treatment. Following through with the treatment chosen by your doctor, and seeing your doctor regularly to make sure treatment is working, are the most important ways to get control over Cushing’s syndrome.

Talk to your doctor about symptom management
It can take several months or sometimes longer to experience real improvement with Cushing’s syndrome treatment. Be sure to ask your doctor about medicines and other things you can do to relieve symptoms while you wait to feel better from your treatment.

Learn all you can about Cushing’s syndrome
Though it is an uncommon condition, there is a lot of information about Cushing’s syndrome on the Internet (such as this Web site) and from other sources. By finding out as much as you can about Cushing’s syndrome, you will be a well-informed patient who can partner with your doctor to help get control over your Cushing’s syndrome.

Join a support group for people with Cushing’s syndrome
There are support groups that are dedicated to helping people with Cushing’s syndrome. Many of the people in these groups have or had Cushing’s syndrome, or have been a caregiver for a loved one with Cushing’s, and they can provide valuable insights and encouragement about living with this condition. Click here for more information about these support groups.

Take care of your body
It is always important to follow your doctor’s instructions regarding diet and exercise. There are certain nutritional guidelines that have been developed specifically for people with Cushing’s syndrome. Click here to read about these guidelines.

Taking control of your life with Cushing’s Syndrome diagram

As you can see, there are a number of ways that may help you take control of your life with Cushing’s syndrome. By talking to your doctor, as well as joining a Cushing’s support group, you will probably learn even more ways!

Click here for downloadable materials about Cushing’s syndrome.